Support Groups

EpendymomaPeople.org - is an online "chat" support forum for the discussion of ependymoma tumors. It is available to anyone who is affected by ependymomas. Their slogan is "Sharing...stories, success, support, & love".

BrainTrust.org - one of the inspirations for the creation of Ependymoma.info. The mission of T.H.E. BRAIN TRUST is to create a healing exchange of information and support among People affected by neurological disorders including patient-survivors, families, caregivers, health professionals and researchers.

Additional Support Resources

CaringBridge.org - offers free, easy-to-create web sites that help connect friends and family when they need it most.

Many of the websites listed in our References section offer support groups as well.

If you are aware of other ependymoma support groups, please contact us. They do not have to have a website.